پدیدارشناسی تجارب مادران با فرزند مبتلا به ناتوانی یادگیری

متین, حسین; احمدی, صدیقه; جلالی, مرضیه

doi:10.22034/ijfp.2021.245545

نویسندگان

دانشگاه خوارزمی

https://doi.org/10.22034/ijfp.2021.245545

چکیده

وجود کودکان مبتلا به ناتوانی یادگیری اغلب نظام خانواده را تحت تأثیر قرار می‌دهد و تغییرات مهمی در زندگی خانواده‌ها و به‌ویژه نزد مادران ایجاد می‌کند. بررسی تجارب و اثرات ناتوانی یادگیری بر زندگی از زاویه دید والدین کودکان مبتلا به ناتوانی یادگیری به‌ویژه مادران این کودکان دارای اهمیت است. بر همین اساس، هدف این پژوهش دستیابی به تجربه مادران در زندگی با فرزند مبتلا به ناتوانی یادگیری بود. این پژوهش کیفی با استفاده از روش پدیدارشناسی و با نمونه‌گیری هدفمند اجرا شد. 10 مادر دارای فرزند مبتلا به ناتوانی یادگیری بر اساس معیارهای ورود به پژوهش انتخاب شدند. داده‌ها به روش مصاحبه‌های نیمه ساختاریافته جمع‌آوری شد و داده‌های مصاحبه‌ها به روش کلایزی تحلیل شدند. یافته‌ها سه مضمون اصلی احساسات ناخوشایند تجربه‌شده مادر (الف. احساس بی‌ارزشی، شرم و گناه، ب. احساس افسردگی، ج. پرخاشگری و عصبانیت، د. احساس ناامیدی و تنهایی)، نگرانی‌های اجتماعی و تحصیلی (الف. ضعف در بعضی درس‌ها، ب. پنهان‌کاری و ارتباط اجتماعی کم، ج. دلهره فرزندآوری)، تنش و تعارض خانوادگی (الف. درگیری و تعارض با همسر، ب. درگیری و تعارض در تعامل با کودک) را نشان دادند. این یافته‌ها می‌تواند اطلاعات لازم را در خصوص منابع حمایتی و اتخاذ راهبردهای حمایتی و درمانی برای مادران فرزند مبتلا به ناتوانی یادگیری جهت تأمین سلامت روان و بهبود زندگی آنها فراهم نماید.

کلیدواژه‌ها

عنوان مقاله [English]

Phenomenology of the experiences of mothers of children with learning disabilities

نویسندگان [English]

Hossein Matin
Sedigheh Ahmadi
Marzieh Jalali

چکیده [English]

The presence of children with learning disabilities often affects family system and creates significant changes in the lives of family members, especially mothers. It is important to examine such experiences and their effects from the view of parents, especially mothers. Accordingly, this study was aimed at investigating the experiences of mothers of children with learning disabilities. This qualitative research was carried out using a phenomenological method with purposeful sampling. According to the study criteria, 10 mothers with children affected by learning disabilities were selected. Data were collected through semi-structured interviews. Data were analyzed by Colaizzi method. The findings revealed three main common concerns of these mothers: unpleasant emotional experiences: a) feeling of worthlessness, shame and guilt, b) feeling of depression, c) aggression and anger, d) feeling hopeless and lonely; social and educational concerns: a) weakness in some lessons, b) secrecy and lack of social connection, c) fear of having a baby; family tension and conflict: a) conflict with spouse, b) conflict with child interaction. These findings can provide information regarding supportive resources and therapeutic strategies for mothers of children with learning disabilities to improve their mental health and lives.

کلیدواژه‌ها [English]

learning disabilities
Phenomenology of Mothers' Experiences
Qualitative Research

مراجع

Al-Yagon, M. (2015). Fathers and mothers of children with learning disabilities: Links between emotional and coping resources. Journal of Learning Disability Quarterly, 38, 112-128. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th Ed). Washington, DC: Auteurs. Brabcová, D., Zárubová, J., Kohout, J., Jošt, J., & Kršek, P. (2015). Effect of learning disabilities on academic self-concept in children with epilepsy and on their quality of life. Research in Developmental Disabilities, 45, 120-128. Dehle, C., & Weiss R. L. (2002). Associations between anxiety and marital adjustment. The Journal of Psychology, 136, 328–338. Di Giulio, P., Philipov, D., & Jaschinsk, I. (2014). Families with disabled children in different European countries. Families and Societis, 23, 1-44. Donaldson, S. I., Dollwet, M., & Rao, M. A. (2014). Happiness, excellence, and optimal human functioning revisited: Examining the peer-reviewed literature linked to positive psychology. The Journal of Positive Psychology, 10, 185- 195. Dyson, L. (2010). Unanticipated effects of children with learning disability on their families. The Journal of Learning Disability Quarterly, 33, 43-55. Fernández-Alcántara, M., Correa-Delgado, C., Muñozc, A., Salvatierra, M. T., Fuentes-Hélices, T., & Laynez-Rubio, C. (2017). Parenting a child with a learning disability: A qualitative approach. International Journal of Disability, Development and education, 526-543. Goudie, A., Havercamp, S., Jamieson, B., & Sahr, T. (2013). Assessing functional impairment in siblings living with children with disability. Pediatrics, 132, 476-483. Hartley, S. L., Barker, E. T., Seltzer, M. M., Greenberg, J. S., & Floyd, F.J. (2011). Marital satisfaction and parenting experiences of mothers and fathers of adolescents and adults with autism. American Journal on Intellectual and Developmental Disabilities, 116, 81–95. Heiman, T., & Berger, O. (2008). Parents of children with asperger syndrome or with learning disabilities: Family environment and social support. Research in Developmental Disabilities, 29, 289-300. Kandel, I. (2007). The child with disability: Parental acceptance, management and coping. The Scientific World Journal, 7, 1799-1809. Karande, S., & Kulkarni, S. (2009). Quality of life of parents of parents of children with newly diagnosed specific learning disability. The Journal of Postgraduate Medicine. 55, 97-103. Larcan, R., & Cuzzocrea, F. (2011). Funzionamento della famiglia e sviluppo psico-sociale dei fratelli di individui con disabilità intellettive. Psicologia Clinica Dello Sviluppo, 15 , 123-153. Lee, J. (2013). Maternal stress, well-being, and impaired sleep in mothers of children with developmental disabilities: A literature review. Research in Developmental Disabilities, 34, 4255-4273. Little, L. (2002). Differences in stress and coping for mothers and fathers of children with asperger’s syndrome and nonverbal learning disorders. Journal of Pediatr Nurs, 28, 565-570. Resch, J. A., Mireles, G., Benz, M. R., Grenwelge, C., Peterson, R., & Zhang, D. ‎(2010).‎ Giving‎ parents ‎a‎ voice:‎ A ‎qualitatve ‎study‎ of ‎the‎challenges ‎ experienced‎ by‎ parents‎ of‎ children‎ with‎ disabilites. Rehabilitaton Psychology, 55, 139-150. Robledo-Ramón, P., & Garcia-Sánchez, J. N. (2012). Perceptions of the situation of families with children with learning disabilities and ADHD. International Journal for Research in Learning Disabilities, 1, 55-78. Skotarczak, L., & Lee, G. (2015). Effects of parent management training programs on disruptive behavior for children with a developmental disability: A meta-analysis. Research in Developmental Disabilities, 38, 272-287. Taderera, C., & Hall, H. (2017). Challenges faced by parents of children with learning disabilites in Opuwo, Namibia’,‎African Journal of Disability, 6, 266-283. Takahashi, M., Adachi, M., Takayanagi, N., Yasuda, S., Tanaka, M., OsatoKaneda, A., et al… Nakamura, K. (2017). Coordination difficulties in preschool-aged children are associated with maternal parenting stress: A communitybased cross-sectional study. Research in Developmental Disabilities, 70, 11-21. Woodman, A. C., Mawdsley, H. P., & Hauser-Cram, P. (2015). Parenting stress and child behavior problems within families of children with developmental disabilities: Transactional relations across 15 years. Research in Developmental Disabilities, 36, 264-276.

دوفصلنامه روانشناسی خانواده

پدیدارشناسی تجارب مادران با فرزند مبتلا به ناتوانی یادگیری

مراجع

مراجع

دوره 5، شماره 2 - شماره پیاپی 10
10
اسفند 1397
صفحه 53-64

پدیدارشناسی تجارب مادران با فرزند مبتلا به ناتوانی یادگیری

مراجع

مراجع

دوره 5، شماره 2 - شماره پیاپی 1010اسفند 1397صفحه 53-64

دوره 5، شماره 2 - شماره پیاپی 10
10
اسفند 1397
صفحه 53-64